Resources

Resources Introduction

The DementiaWeb site is arranged to make it easy to access dementia related information and services available nationally and locally.

This page introduces some other resources that you might like to make use of.

You may also use find our Search Page useful.

Research

Alzheimer's Research Trust


The Alzheimer's Research Trust is a registered charity conducting research into dementia. It is dedicated to funding scientific studies to find ways to treat, cure or prevent Alzheimer's disease, vascular dementia, Lewy Body disease and fronto-temporal dementia.

For further information please contact:

Alzheimer's Research Trust
The Stables
Station Road
Great Shelford
Cambridge
CB22 5LR
Telephone: 01223 843899
Email: enquiries@alzheimers-research.org.uk

Alzheimer's Society

The Alzheimer's Society is a registered charity which funds research into cause, cure, care and prevention of dementia.

For further information please contact:

Alzheimer's Society
Devon House
58 St Katharine's Way
London
E1W 1JX
Tel: 020 7423 3500
Email: enquiries@alzheimers.org.uk

Dementia Services Development Centres (DSDCs)

A series of Dementia Services Development Centres (DSDCs) conducts research as part of their work within Universities around the UK. It is worth looking at each site as they all have different specialities and publications:

The DSDC at Stirling University, Scotland also has offices in London and Belfast and has an international reputation for design and dementia.

Head office
The Dementia Services Development Centre
Iris Murdoch Building
University of Stirling
Stirling
FK9 4LA
Scotland
Tel: 01786 467740
Fax: 01786 466846

Northern Ireland Office
The Innovation Centre
Northern Ireland Science Park
Queen's Road
Queen's Island
Belfast BT3 9DT
Tel: 028 9073 7846
Fax: 028 9095 0763

London Office
24-26 Fournier Street
London
E16 QE
Tel: 0207 377 2885

The DSDC at Bangor University is the main Welsh site and produces a journal called Signpost.

Contact details:
Neuadd Ardudwy
Bangor University
Holyhead Road
BANGOR
LL57 2PX
Tel: 01248 383719
Fax: 01248 382229
Email: dsdc@bangor.ac.uk

The DSDC at Canterbury Christ Church University in Kent comprises a partnership between the University, the Avante Partnership and ‘for dementia’, the charity which created Admiral Nurses.

Contact details:

Penny Hibberd
Dementia Service Development Centre South East
Canterbury Christ Church University
Canterbury
Kent
CT1 1QU
Tel: 01227 782602
Email: penny.hibberd@canterbury.ac.uk

DSDC - London
The DSDC London is part of the University College of London
University College London
Gower Street
London
WC1E 6BT
Tel: 020 7679 2000

University of Bradford
The Bradford Dementia Group is part of Bradford University and is the home of Dementia Care Mapping. For further information, please contact:

University of Bradford
Richmond Road
Bradford
BD7 1DP
Tel: 01274 232323
Freephone: 0800 073 1225
Email: course-enquiries@bradford.ac.uk

Trent DSDC
Trent DSDC is in Leicester and manages an information resource on assistive technologies for people with dementia. For further information, please contact:

Trent Dementia Services Development Centre
9 Newarke Street
Leicester
LE1 5SN
Tel: 0116 257 5017
Fax: 0116 254 3983
Email: info@trentdsdc.org.uk

Dementia and Neurodegenerative Disease Research Network (DeNDRoN)

The Dementias & Neurodegenerative Diseases Research Network (DeNDRoN) provides a world-class health service infrastructure to support clinical research and remove barriers to its conduct. The aim of the Network is to facilitate research by bringing about focused, effective investment to enhance NHS research infrastructure, and to increase collaborative working between academics, clinicians, patients, carers and research funders. Website: www.dendron.org.uk/index.html

National Resources / Web Sites

APPG is the acronym for The All-Party Parliamentary Group for Dementia.

Launched in June 2007, the APPG is an informal parliamentary group made up of MPs and Peers with an interest in dementia.

Its purpose is to raise awareness of the condition amongst parliamentary and to influence legislation and policy making with the aim of improving the lives of people with dementia and their carers. It has produced two significant reports:

Always A Last Resort': Inquiry into the prescription of antipsychotic drugs to people with dementia living in care homes.

'Prepared to Care' the findings of this inquiry into the dementia care skills of social care staff.

If you wish to know more about the activities of the All-Party Parliamentary Group on Dementia or you are an MP or Peer who would like to join, please contact the Secretariat:

Nicola O'Brien
Alzheimer's Society
Devon House
58 St Katherine's Way
London
E1W 1JX
Tel: 020 7423 3585

National Dementia Strategy (NDS)

The National Dementia Strategy for England was produced by the Department of Health in 2009. Entitled ‘Living Well with Dementia' the NDS has given rise to many developments across the country.

'Living Well with Dementia' A National Dementia Strategy

Social Care Institute for Excellence (SCIE)

SCIE is an online source of good practice guidance, research materials for social care and social work. SCIE launched its Dementia gateway resource in 2009.

National Institute for Health and Clinical Excellence (NICE)

NICE is an independent organisation responsible for providing national guidance on promoting good health and preventing and treating ill health.

Dementia Books

Check out the 11500 records of published materials about all aspects of dementia care and research - including books, journal articles, videos / DVD's and dementia care training resources. In the Alzheimer's Society Dementia Catalogue

Here are two very different books, written 12 years apart, with a very similar message.

Dementia Reconsidered by Tom Kitwood

The late Prof Kitwood wrote this ground breaking book which was published in 1997.

'Contented dementia' by Oliver James

This 2009 book describes the work of SPECAL (Specialised Early Care Alzheimer's) a person-centred dementia care charity undertaking ground-breaking work with older people who have dementia of the Alzheimer's type.
Contact details:

SPECAL (Specialised Early Care Alzheimer's)
The Old Hospital
Sheep Street
Burford, OX18 4LS
Tel: 01993 822 129
Fax: 01993 822 846
Web: www.specal.co.uk

Online

You can have a look at various articles on 'dementia' from the Department of Health website.

This well researched NHS publication provides information and support for the carers of people with dementia and has been found to be very helpful by many carers.

Unfortunately it seems to be quite frequently out of print, so although this is a large document to download having it available as an online resource is very useful.

Dementia Journal

A very popular Journal is the subscription only, bi-monthly Journal of Dementia Care. This is published by Hawker Publications who also arrange the National Dementia Congress and The Journal of Dementia Care

Age UK

Age UK England

Information and factsheets are available on the Age UK England website.

Freephone information line 0800 00 99 66 (every day 7am-7pm)

NHS Direct

If you are unsure about whether something needs medical attention, or would like general health advice, you may find it useful to visit the NHS Direct website. The NHS Direct website is part of the National Health Service, and aims to provide high quality health information and advice. If you are feeling unwell you can telephone NHS Direct on 0845 4647 for individual advice and information, given by nurses, 24 hours a day.

Public Services

Direct.gov.uk

Directgov is a national government web site providing comprehensive information on public services, (including benefits).

Kent Publice Service Network (KPSN)

The Kent Public Services Network (KPSN) a single ICT infrastructure serving Kent Connects’ partnership of all 14 Kent and Medway Councils, Kent Police and Kent Fire & Rescue Service. Managed through a unique partnership agreement and launched in February, the network links 1,100 sites, and 250,000 users, with a high-speed, high-capacity broadband network:

Contact details:

Jeff Wallbank
KPSN Partnership Development Manager
Room G05
Sessions House
County Hall
Maidstone
ME14 1XX
Tel: 01622-694140
Email: Enquire.KPSN@kent.gov.uk

Kent County Council (KCC)

KCC provides key information and contact details for services in Kent. Please go to Kent County Council for further information.

Medway Council

Medway Council tries to enable people to live as independently as possible. For further information please go to Medway Adult Social Care.

Interpreters and Translation

Kent County Council - Alternative Languages

Kent County Council can help you get information about their services or publications in most language. An English-speaking operator will take details of your requirements and arrange a translation or interpreting service. You may need an English-speaking friend or a family member to help you with this. KCC may not be able to meet your requirements immediately, but will try to provide an interpreter or translation services as quickly as possible.

Write to:

Kent County Council
Interpreting and Translations
County Hall
Maidstone
Kent
ME14 1XQ
Tel: 08458 247 247
Email: county.hall@kent.gov.uk

Medway Council - Alternative Languages

Community Interpreting Service (CIS)

CIS is a long-established specialist interpreting and translation service. The CIS ensures equal access to services and public bodies have a duty to communicate effectively with people whose first language is not English. The CIS is a reliable and confidential service in more than 60 languages.

Write to:

Community Interpreting Service
Medway Council
Gun Wharf
Dock Road
Chatham
Kent
ME4 4TR
Tel: 01634 335577 (Bookings) 01634 331286 (Enquiries)
Email: cis@medway.gov.uk

Further information about local support for people from ethnic minorities is available on our Local Support page.

The Royal College of Psychiatrists

The Royal College of Psychiatrists is committed to improving the understanding of psychiatry and mental health. The College aims to provide a greater understanding of the interaction between mental and physical health and the social and cultural context in which people live. The College also promotes research and publishes the results on their website.

Please follow the above link for further information.

International Resources

Alzheimer's Disease International has an extremely helpful web page of contact details and web links for Alzheimer associations in around 75 different countries around the world.

This information is likely to be useful for people living with dementia in Kent and Medway, whose first language is not English, and also useful for people who live locally, but have friends or family members living with dementia abroad.